Awareness and Education

1. • Awareness & Education campaigns: To increase awareness amongst SBH families, healthcare professionals and the general public through ongoing workshops and webinars about these conditions, symptoms, treatments, management and care, rehab equipment needs etc.
   • Family Educational Programs: Educational webinars and workshops to SBH persons, families and caregivers on managing daily life, treatment options, knowledge and skills to manage the condition effectively.
   • Healthcare Professionals Training: Sessions for healthcare providers to update the latest treatments, best practices, and research findings to foster multidisciplinary approach.

Support and Services

• Support/ Funding for SBH persons & families: To offer a platform for services such as medical, rehabilitation (such as specialised wheelchairs, orthotics and mobility devices as well as personal care items like catheters and diapers), sponsoring transport costs for needy members for hospital visits.
• Family Programs: Interact and support individuals and families through community programs such as family days, festival celebrations, annual general meetings, OKU sports to foster togetherness as one community.
• Home Visits and Peer Support: Making home visits to give emotional support and practical advice whilst identifying unmet needs and peer support by connecting individuals and families dealing with similar conditions through various support groups.
• Referral letters: To assist in referring SBH clients to the nearest SBH clinic to get an appropriate healthcare or multidisciplinary care.

Collaborations and Networking

SiBIAM understands the importance working together for the sustainability of the organisation to continue to serve its community. Thus, besides its long and beneficial partnership with RCD Damansara and DASH, It has also built a strong network of healthcare professionals from various disciplines who serve on a voluntary basis as well as industry partners such as hospitals, rehab equipment companies, and other government and non govt agencies who are able to assist in SIBIAM’s mission to serve persons living with SBH.

Advocacy

Acting on behalf of its members to be the voice of advocacy by working with Nutrition Dept of Ministry of Health in areas of food fortification as well as with NGOs and agencies in advocating for equality and rights of persons living with disabilities. -Nutrition Division, Ministry of Health

Fundraising

Fund raising plays an integral role in assisting the organisation to carry out all of its activities, whilst rendering support and providing SBH persons with the necessary assistance

Together, we aim to build a world where everyone affected by Spina Bifida and Hydrocephalus can thrive and reach their full potential.