Our Partners in Malaysia

The District Action Group of Spina Bifida & Hydrocephalus (DASH) is not set up as an independent organization but as a body to stimulate interest in Spina Bifida & Hydrocephalus and promote projects which can be jointly undertaken by Rotary clubs and other interested organisations. The Rotary club of Damansara has taken a lead on this matter and it is the aim of DASH to extend this work through the other Rotary clubs in the district and always working closely with the national SB & H organisation SIBIAM to progress awareness, Education, and Engagement.

Our International Partners

A BETTER LIFE FOR EVERYONE

The International Federation for Spina Bifida and Hydrocephalus (IF) was founded by people with Spina Bifida and Hydrocephalus (SBH) and their families in 1979. Over the years, it has grown from a voluntary association into a professional disabled people’s organisation (DPO) with global coverage, democratic structure and transparent and accountable processes.

The majority of IF member organisations are led and governed by adults with SBH or parents of children with SBH. Children are active participants in our members’ activities: they are involved in child-led activities, training workshops on independence and holiday camps. Nowadays, many young people with SBH have taken over the leadership of their organisations. In most cases, IF members choose close cooperation with medical and education professionals and researchers, given the importance of these professions to children and adults with SBH for their survival and development.

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