Spina Bifida Association Malaysia (SIBIAM) was set up in 2007 as a non-profit organisation to look after
the interest of children and adults with Spina Bifida and its related disorders.
Spina Bifida is a condition that affects the spine and the spinal cord of an unborn child, leaving the child with
varying degrees of paralysis that can lead to other physical and emotional challenges in the growing years.
Besides their core medical and social problems, these children have differing needs and recurring expenses in
areas of personal aid, basic mobility and therapy equipments, all of which are necessary to enhance their
ability to receive an education, socialise and enjoy an improved quality of life.
SIBIAM aims to improve the life chances of persons with Spina Bifida through practical and meaningful
Thus, we look to work collaboratively with parents, volunteers and medical personnel in representing the
Spina Bifida community in Malaysia. We are also grateful for the support from our sponsors who work hand in
hand with us to reach out to more Spina Bifida children and their family members.
We work towards helping people with Spina Bifida realise an active, meaningful and independent life
as members of the community through the following projects and programmes:
- Building a resource centre
- Creating awareness and Spina Bifida prevention campaigns
- Therapy and counseling services
- Revolving equipment library ( wheelchairs, standing frames, orthotics etc)
- Subsidy for catheters, catheter bags, diapers
- Education & Career guidance workshops etc.